January 2017 #4PUF


Here we are on the last day of January and it’s my first post of 2017! I thought I’d begin with one of my regular blogs, that of the monthly #4PUF or 4 Previously Untweeted Favourites:

(4/4) OK, so it’s an advert (other chocolates are available 😂), but pretty cool yeah? #WorldBrailleDay #EqualityandInclusion #4PUFworldbrailleday

(3/4) What do you know about #crohnsdisease? Here’s a chance to find out more 👍 #GetYourBellyOut @CrohnsColitisUK @CrohnsDiseaseUK #4PUF Woman with #Crohns Disease bravely bares #ostomy bag for first time #GetYourBellyOut @HuffPoLifestyle @tashahinde http://www.huffingtonpost.co.uk/entry/woman-with-crohns-disease-bravely-bares-ostomy-bag-for-the-first-time_uk_58736c4ce4b0961f09387c96ncid=engmodushpmg00000004getmybellyout

(2/4) Do you know what the #SymptonsOfSepsis are? If not take a look at this short video #sepsis @UKSepsisTrust #4PUF https://twitter.com/NHSChoices/status/821648965666009089 For more information visit:

(1/4) New brand, same message #UnitedAgainstDementia 👍 @alzheimerssoc #4PUF https://twitter.com/alzheimerssoc/status/826151754496667648united-against-dementia

I hope you enjoy reading them and if you feel able to then please as ever…#ReadLearnShare




#TOTW from 22-06-16 ‘#Alzheimers and #Diabetes’


After a week off for my birthday i’m back with #TOTW, for which this week I have chosen:

I wasn’t aware of the link between and until I read this article – interesting http://www.telegraph.co.uk/news/2016/06/21/drugs-used-to-treat-diabetes-could-cure-alzheimers-experts-say/

“Scientists believe that the two conditions are so similar that medications already used to control levels of glucose and regulate diabetes could also halt the onset of dementia.”

I wasn’t aware of the link between the two, either way, before I read this article. Interesting. It just goes to show that there is so much research going on that most of us probably have no knowledge of. Hopefully by me sharing the articles and stories that I do there may be a few more people at least that get to find out about some of these interesting developments!



ben 🙂

#TOTW from 14-08-15 ‘Help us beat dementia’

Afternoon folks!

It was a pretty easy choice this week! Here is my #TOTW:

I’ve just signed up to with we might get one step closer to a cure!

I’ve been meaning to sign-up to this for as long time now, but finally got round to it this week! PLEASE, PLEASE, PLEASE, check out the link and see if you feel able to sign-up and join in dementia research.

It can be done online and takes just a few minutes. You might be able to take part in a suitable research project near you.

SIGN-UP TODAY! The sooner we get more volunteers, the nearer we will be to one day beating this dreadful disease!

Thank you!

Ben 🙂

#TOTW from 23-07-15 ‘Scientists find first drug that appears to slow Alzheimer’s’

Hey so!

Another week, another great news story about Alzheimer’s and the progress being made in current research:

This has to be yesterday’s most important & exciting news story on the potential benefits of the drug

Dr Eric Karran, director of research at Alzheimer’s Research UK said:

“This is the first evidence of something genuinely modifying the disease process. It’s a breakthrough in my mind. The history of medicine suggests that once you get through that door you can explore further therapeutic opportunities much more aggressively. It makes us less helpless.”

We should be careful when using terms such as “a breakthrough,” but there does seem to be genuine excitement for the possibilities with the drug Solanezumab. It appears to be most effective when given to patients in the early stages of the disease. This of course will mean that for the greatest benefits to be possible then people will need to be diagnosed as early as possible in order to be able to benefit from this potential discovery. This will require funding not just for the research itself, but for the support services around diagnoses – GP’s, follow-up clinics etc.

There will undoubtedly be more stories like this over the coming months and years. It just goes to show the importance of research and the need for this to be properly funded by Government.

This has been a good news week for Alzheimer’s – again! Long may we have many more in the future!

G’nite folks!


#TOTW from 13-07-2015 ’15-year-old schoolboy develops test for Alzheimer’s’

Welcome All!

Here we are again in the regular Sunday night slot! It didn’t take much thought to pick this week’s #TOTW as I felt there was one stand-out story from the week:

15-year-old schoolboy develops test for ‘s How come this hasn’t been thought of before?!

Krtin Nithiyanandam told the Daily Telegraph:

The main benefits of my test are that it could be used to diagnose Alzheimer’s disease before symptoms start to show by focusing on pathophysiological changes, some of which can occur a decade before symptoms are prevalent.

My question is…how on earth has it taken 15-year-old child to come up with something like this? Has it not been thought of at all before? It seems such a simple and obvious idea, and yet i’m sure the chemistry behind it is far from simple!

It’s all to do with antibodies, fluorescent nanoparticles, trojan horses and the blood-brain barrier. It’s great! Can you imagine the possibilities for the advancement of research – and maybe even one day, treatment – in this area if this idea can be developed and becomes a reality!?

Good on ya Master Krtin Nithiyanandam! Let’s hope he does go on to study medicine and pursue a career in the medical profession.

That is all!

Ben 🙂

#TOTW from 13-03-15 – What Terry Pratchett said about death

This week saw “Death” come to collect Terry Pratchett, so my #TOTW has to be one which contained a number of things that both TP as himself and “Death” said:

What said about  

My favourite quote being:

I dare say that quite a few people have contemplated death for reasons that much later seemed to them to be quite minor. If we are to live in a world where a socially acceptable ‘early death’ can be allowed, it must be allowed as a result of careful consideration.

“Let us consider me as a test case. As I have said, I would like to die peacefully with Thomas Tallis on my iPod before the disease takes me over and I hope that will not be for quite some time to come, because if I knew that I could die at any time I wanted, then suddenly every day would be as precious as a million pounds. If I knew that I could die, I would live. My life, my death, my choice.

(Richard Dimbleby Lecture, 2010)

Couldn’t have put it better myself Sir Terry…but then words were – still are – his speciality!

Bon voyage TP!

#TOTW (from 10-07-2014): ‘Alzheimer’s research in ‘major step’ towards blood test’

This last week has seen yet more stories about assisted dying and people coming out in favour of, or arguing against it. However, as I blogged about this last weekend, I have decided to go with the week’s other big news story as far as I could see, and that was the announcement of a blood test that has been developed in order to help in the battle against Alzheimer’s. This week’s #TOTW is therefore:

Alzheimer’s research in ‘major step’ towards blood test via

Another link I tweeted was also related to the above tweet and is also worth taking a look at:


Dr Eric Karran, director of research at Alzheimer’s Research UK, described the study as a “technical tour de force”. However, he warned the current accuracy levels risked telling healthy people they were on course to develop Alzheimer’s which may lead to anxiety and depression. However, Dr Karran did argue this was a step towards making Alzheimer’s a preventable disease.

“I think it does, but not immediately. This gives a better way to identify people who will progress to Alzheimer’s disease, people who can be entered into clinical trials earlier, I think that will increase the potential of a positive drug effect and thereby I think we will get to a therapy, which will be an absolute breakthrough if we can get there.”

Although this announcement is just one of many that seem to be made about the battle against this horrific disease, I feel it marks an important step. Although scientists have a long way to go, this blood test demonstrates the value of research in finding a way to tackle dementia, in all it’s forms. This should give us the hope that with more investment in research and with continued effort from the scientific community along with support from Government and other interested organisations, that maybe one day, whether it be in 10, 15 or 20 years time that we may find a way of detecting signs of the disease early enough to prevent it from causing further damage, and maybe even one day to find a cure.

We can but hope.

#TOTW (19-06-2014): ‘Dementia progress ‘achingly slow’ says global envoy’

In a week dominated by talk of dementia, I decided that this week’s #TOTW is:

‘Dementia progress ‘achingly slow’ says global envoy’ via


I think Dr.Gillings sums it up far better than I could, so:

“Dementia is a ticking bomb costing the global economy £350bn and yet progress with research is achingly slow. Research must become more attractive to pharmaceuticals so they will invest and innovate.

“Just as the world came together in the fight against HIV/Aids, we need to free up regulation so that we can test groundbreaking new drugs, and examine whether the period for market exclusivity could be extended.

“Without this radical change, we won’t make progress in the fight against dementia.”

If you look at the figures on the BBC link, then you will see that Government spending on dementia research is almost 1/10th that which is spent on cancer research, and although I’m not suggesting that one is more worthy than the other, clearly there needs to be a re-balancing of the proportion here. The Government has pledged to increase spending by about £14 millions by next year. Clearly a drop in the ocean, and not something that is going to help the massive push needed to come up with either a preventative drug or a cure for this extremely debilitating disease.

Until next week…